About Me

My name is Kathy, and I live in the north-east UK with my husband and our three children.  I have been living with chronic back pain for over four years now.   On 30th March 2013 I was diagnosed with Complex Regional Pain Syndrome, formerly known as Reflex Sympathetic Dystrophy.

After having many ups and downs with NHS services, I thought it might be positive to share these in a blog.  I’d also like to share personal experiences of pain and mobility issues.  I’m sure there are many people out there who are living with chronic pain of various causes, known and unknown, who could use a positively geared resource of information, links and personal experiences to help them on their way to conquering their pain.

I write product reviews, share what’s happening with me, and some information on chronic pain.  I would love feedback or ideas on topics to write about or post up for others, including your own personal experiences if you fancy.   This doesn’t have to be limited to CRPS.  Ultimately this blog is here not to vent or wallow (although I’m only human, haha!) but for you lot to get some support, information and perhaps forge some friendships with similar-minded folks.

As a kindof conjoined aside to this blog, I am very interested in raising awareness of CRPS in the UK in particular, and would love to hear from others in the UK who would like to be involved in perhaps getting that ball rolling.

What I can’t do with this blog is give personal medical advice, but I will share my personal experiences and those of others who wish to share.  So if you like what you read, stay in touch, “follow” this blog and use the comments spaces to give feedback or ideas, they’re all welcome.  If anyone would prefer to contact me privately, I have a contact page in the links above.

Many thanks

Kathy (the Wobbly Wife)

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  1. Please feel free to email me anytime. My email is mmorheather@gmail.com I was diagnosed march 2012.. I know you have questions,as we all do… But hopefully I can help you (at least alittle.) 😉

    *CRPS Angel*
    Heather Lynn

  2. Thanks Heather Lynn, I really appreciate it. xxx

  3. Hi my name is Kirsty Humphreys and im 23 and I have suffered from CRPS now for the pzst 3 and a half years, it was such a shock when I got diagnosed as I’d never heard of it before I didn’t know what was happening and there was ni1 I could talk to because no1 knew what it was, Nd now they just don’t understand it and think its just a little knee and leg pain I suffer with, I have been trying to find support groups and people who suffer as well to talk to and there is nothing that I can find, I don’t really know what to do and with you being a sufferer is there anything you can advise me. I have recently had the spinal cord stimulator (23/12/13) to try and help me but I’d just like to maybe meet others who have it andbe able to talk to people who truly understand my pain and how extremely difficult life is. I’m only 23 and have had no life at all 😦 I’d really appreciate it if you’d get ba k to me, thanks for your time. Kirsty xx

    • Hi Kirsty
      Thanks for your message, it’s lovely to meet you. I’m sorry you have CRPS too. I’m also sorry the blog has been quiet recently, but I’ll get back on with it soon. Things have been pretty hectic at home here as my son has been going through assessment and diagnosis of autism. Please feel free to drop me an email whenever you’d like!

      Kathy
      xxx

      • Kirsty Humphreys

        Thank you so much for your reply 🙂 it’s so hard being a CRPS sufferer especially when there is not many of us around. Where I live no1 at all understands what it is and make up their own minds about it thinking it is just a little bit of pain and that now I have had my spinal cord stimulator that I will ‘soon be up and running’ and as you obviously know that isn’t the case with CRPS therenis there is no cure and the suffere has to deal with it for the rest of their lives. I’m only 23 and have to deal with this the rest of my life and it would be nice to be able to be in contact with other sufferers because they are the only ones who can truly understand what I’m going through! U don’t suppose you know of anyone else or like support groups where sufferes can get together? Thanks so much for replying Kathy
        Kirsty Xx

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